All I want for Christmas is a kidney for my 15-year-old daughter. I don’t want any fancy sewing machines, big diamonds, or two front teeth. I’m not the only mother wishing for a kidney.
Just when we thought it was ok to breathe for a moment. We received the news that my daughter’s kidney transplant has been canceled. Mr. Diva’s dear friend (and my daughter’s kidney donor) flew in from Las Vegas to New York City last week and went through all of the living donor kidney evaluation tests.
Doctors noticed he had high sugar levels. They were puzzled as his original sugar test he took in Las Vegas was fine. Not to mention, every other test the doctors gave him here in NYC came back normal (kidney scan, EKG, complete blood work, etc.). So doctors tested his sugar a 3rd time and determined he is pre-diabetic disqualifying him as a suitable kidney donor. Although he can know be put on medicine to lower his sugar and prevent future diabetes, he is heartbroken as he so wanted to help save my daughter’s life. We will be forever grateful for his kindness. He symbolizes true friendship.
We are all devastated. Everyone thought it was a “done deal” as the doctors had already booked the operating room for January 2nd. But all hope is not lost. The transplant center told us they have an altruistic kidney donor who has been tested and is a perfect match for Marielle.
However, in order for Marielle to receive this altruistic donor’s kidney, someone from our family or friends needs to also donate to another in need of a kidney transplant in their Donor Exchange Program. The hospital has performed a Three Way Kidney Swap and even a Four Way Kidney Swap.
Also, the transplant center wants to retest my siblings to compare their antibodies against Marielle’s again. The doctors feel if it is only one antibody in question, they will consider doing plasmapherisis to Marielle’s blood.
Over the next few days, our family will discuss these two options and make a decision on what we feel would be best for Marielle. We are hopeful we will come up with a solution. Please continue to keep our Sunshine Girl in your prayers.
Wishing everyone a blessed holiday!