On Tuesday Marielle was transferred from our local ICU unit to NY Presbyterian’s ICU to battle an unexpected infection. Doctors at our local hospital told us it was a life and death matter. Talk about scary. I was besides myself. Thankfully after 4 days and lots of great care, Marielle beat the infection!
A big picture of a sun hung over my Sunshine Girl’s bed. And the room was painted bright yellow—her favorite color (and my least favorite–which might have something to do with seeing the yellow jaundice in her eyes as an infant).
It was a difficult 4 days. Difficult listening to the cry of another mother who’s child lost their battle. Difficult to take the elevator ride down to the first floor with this mom, each of us knowing the other knew what happened and dealing with the silence. I wanted so bad to wrap my arms around her and tell her anything that would ease her pain. But there is nothing you can really say. Nothing that would make sense.
One sees lots of things in a pediatric ICU. Things I cannot tell you. Things that would change you. Things that would break your heart. And I know all the while, my child is the lucky one today. And she’s scared. She’s old enough to know what is happening around her. I wish I could shelter her from the fear and uncertainty of what lies ahead for her.
And I think of my old friend, Nobia, who’s son Cody is hospitalized in a Japanese ICU fighting for his life. Sending lots of prayers for our Code Man. Marielle is used to hospitals, but Cody is not. I wish I could tell him not to be afraid.
Marielle’s kidney transplant has been rescheduled for January 2nd. It will give her enough time to make sure she tests negative for infection 3 times before transplant (she’s already tested negative once). So although the wait for her second chance at life will be a little longer, it will work out better for everyone involved. Now if we can just keep her blood pressure under control until then…
On another note, before we left out local hospital, Marielle received hemodialysis as an inpatient. The hemodialysis unit is PINK! Not only are the walls pink, but the staff nurses wear pink scrubs! But I think what I liked best was Bob’s custom Nike sneakers which read “HEMOBOB” on the back of each sneaker! Brave man to wear pink sneakers!
As a sewn product manufacturer, I think Nike’s customized NikeID sneakers are ingenious! And at about $100 a pair, the price is right!
I’ll blog more tomorrow as I have a lot to say about the new CPSIA children’s products requirements….but until then, I’m calling it a night. In the meantime, start reading all the information over at Fashion-Incubator. They’ll be a quiz tomorrow.