PLEASE SEE MOST RECENT UPDATE:
Marielle is still hospitalized up at NY Presbyterian-Columbia Hospital. Although dialysis has helped bring her kidney numbers under control, we are still struggling with dangerously high blood pressure. And my worst fear about dialysis has happened—her catheter is infected…but only at the catheter exit site so far. Docs are working hard to get the infection under control, so they won’t have to remove the catheter in her chest and implant another.
Computer access up here STINKS! We’ve tried everything to get our laptop to work in her hospital room, but techs say the room doesn’t have a good wireless signal. Luckily I’ve found a computer in one of the parent lounges, so I can now check my email and blog.
Our new transplant coordinator (oh my, I adore this lady) has gotten a TON of donor evaluation consent forms…more than I could have ever wished for. I believe the hospital is only permitted to send out 12 blood vial kits to possible kidney donors each week (something about our private health insurance limits). So please hang in there with me while we sort through all the donor forms.
There’s been many comments on my blog that need answers. So here goes:
- Marielle is an A blood type. It doesn’t matter what blood type as they have the ability to do a mismatch.
- Marielle is on hemodialysis as she cannot have peritoneal dialysis (through her abdomen) due to her prior liver transplant.
- Although dialysis will prolong Marielle’s kidney function, it has not been able to control her blood pressure. And the more blood pressure issues, the more heart damage.
- Marielle is having terrible pain due to bowel problems. Docs have tried a half a dozen laxatives, fibers, etc.—nothing seems to be working to stop the ongoing pain.
I am waiting to hear back from our transplant coordinator. Apparently she “might” have found a good donor for Marielle. She said it looks good on paper, but it would need to be run through their computer to determine if the donor would match. However, the hospital will continue to search for a better match in the meantime. The better the match, the more successful the transplanted kidney function.
I once again want to thank EVERYONE. I cannot believe how everyone has rallied around me and my Sunshine Girl. You all give me strength to face each day. Seriously. I hope to have good news soon. Thanks for coming along on this journey with us.