PLEASE SEE MOST RECENT UPDATE:
On Thursday night, we had to call an ambulance to get Marielle to the local emergency room as her condition was deteriorating quickly.
Marielle’s kidney blood numbers were climbing fast. Her creatinine was 10 (normal creatinine is 0.5 to 1.1), and her BUN was 119 (normal BUN is 8-20). Surgeons where called to place a tunneled catheter in her chest and start emergency dialysis.
After her 2nd dialysis treatment on Saturday, she got some color back in her face. She passed the time by reading a book on my Kindle book reader.
However, she was just too weak to finish more than a chapter of George Orwell’s 1984. She easily fell asleep for the rest of her dialysis treatment.
Although we were able to get her kidney numbers down a bit, her blood pressure (178/107) continues to be a major problem. This morning her blood pressure is even higher and they’ve started rescue blood pressure medicine to try to lower it.
Marielle will be hospitalized here in Staten Island until Monday night and then have her kidney transplant evaluation at NY Presbyterian-Columbia University on Tuesday morning if we can stabilize her. She will get to come home between Monday night and Tuesday morning. Not sure what will happen after that. If we can stabilize her, she’s be able to get outpatient dialysis until we can find her a kidney donor.
If you are interested in being tested to see if you are a possible match for a living kidney donor, you can find more information on my previous blog post. I can’t tell you how grateful I am for all the outpouring of support and prayers. I wish I could reply to each and every email, but my time on the computer is very limited. Please know I read each post and email and am touched by all the love from friends and strangers.
I will update everyone as soon as I can.