My 300th Post Blog Giveaway, More Pattern Making and a Kidney Transplant Update

Free Candy

Wow!  This is my 300th post…I’m thinking I talk too much.  Anyway, in celebration of this milestone, I’m going to give away the last of the BBQ Candy Cart stash…

bbq200624

Ok…so why should you win the free candy?  Let’s see.  How about whoever links back to this post and gets the most pingbacks (hits coming back here) wins?  Yep…so go link me in a post on your blog!  Be sure to put your email address in the comments section of this post.  I’ll announce the winner on Monday.

More Pattern Making

I spent Monday editing all the photos (over 40 photos..ugh) I took of my Downtown Joey fit samples on my son (size 6) and two mannequins (size 4 and 5).  I then emailed them to my pattern maker, so we can finalize the sample patterns.

I am having one problem with my boys’ pants design:  ZIPPERS.  I can get standard zippers 3 1/2″ and 5″ inch long.  But I’m trying to avoid having to have the zippers custom cut as it adds an additional $1 onto my costs.  And that’s not ok.  Especially since it looks like I need a 4″ zipper on several of the sizes.  Any suggestions or wholesale zipper leads from the peanut gallery?  I’ll be your best friend.  Did I mention I’d prefer burnt orange or rust colored zippers?

I’m Cool…I have a Beeper

beeper

On Tuesday, my daughter and I went to Philly for another doctor’s appointment.  I had a HORRIBLE day.  Seriously.  I’ve cried all night–it all seems so grim.  All the options SUCK.  Really.  I felt like I was being bullied into their way of thinking.  The whole kidney transplant protocol has me very uneasy.  Basically they tell me it’s dialysis or death–take your pick.  Like I said, all my options SUCK.  But I think what got me most upset was they said this while my daughter was in the room.  DIE is one word that I don’t allow to be spoken in my home or anywhere else.  And especially in front of my child.  KWIM?

I can’t begin to explain my feelings of helplessness not being able to be my own daughter’s kidney donor (I have Lupus, so they won’t consider me).  And Mr. Diva™ has chronic kidney stones (for which he’s hospitalized at least twice a year).  This is so not fair.

Two of my sisters, my brother and my nephew have all come forward to donate their kidneys.  But unfortunately, it’s just not that easy.  Not sure if we are going to go the living donor route.  There’s so much to consider.  We need to weigh the pros and cons with each donor.  This is so hard.

Since my daughter is now officially listed for a kidney transplant, the social worker finally gave me a beeper.  It brings back memories of when my daughter was waiting for her liver transplant 15 years ago.  When my beeper would beep, it was usually the beeper company calling to remind me to pay the $12 monthly bill.

On the Eve of St. Patrick’s Day 1994, my beeper buzzed.  I didn’t pay it much mind, because I figured it was the bill reminder once again.  But just to make sure, I checked the incoming number.  OMG!  It was the liver transplant center and they had a cadaveric liver for my daughter.  The rest is history.  She received her new liver the next morning.  It was the greatest day of my life (and hers).  I’m hoping we’ll be this lucky again. 

 zingers

It’s very hard to deal with life these days.  However, it’s amazing what some Hostess Zingers (and everyone’s support) will do for the spirit.

lisa

Comments

  1. Please email me. I live in New Jersey and want to know where to go to get tested for compatibility. I can spare one.

  2. Do you know of Virginia Postrel’s (author of The Substance of Style) quest to donate her kidney? She says (not in this article I’m linking to) that she was discouraged most of all by the medical establishment. They were the least likely to help. She says a donor has to go through hoops and basically demand to donate.
    http://www.dynamist.com/articles-speeches/opeds/kidney.html

    I hope you know that all of us over at F-I are pulling for you and your sunshine girl.

  3. Just wanted to pass along this wholesale zipper contact…I have only worked with them once in the past, but they were super competive and a pleasure to work with.

    Laura Ornelas
    Catame Inc. / UCAN Zippers USA
    1930 Long Beach Ave.
    Los Angeles, CA 90058
    T: (213) 749-2610 ext. 14
    F: (213) 746-1149
    http://www.catameinc.com
    “A woman owned, small business zipper manufacturer.”

  4. I am praying for you and your family during this very tough and exhausting time!

  5. I’m praying for you Lisa and your Sunshine Girl! My heart goes out to you.

    Debbie

  6. I was thinking the same thing as your first poster Lisa – can I be tested?
    My own health issues have *never* affected my organs (unless you count skin!) and my kids have enough siblings that they shouldn’t ever need me to donate. ;-D

    Please, please let me know if there is ANYTHING we can do for you, and don’t let them bully you – you have amazingly good sense. Take whatever course your momma’s heart tells you to!

  7. Brenda Erickson says:

    I would love to hear where people could be tested in order to find a match for your sweet daughter. I will be honest and say I am terrified of surgery BUT my DH is not and he is a strong believer in organ donation….he dontated bone marrow two years ago and would love to find a match to do that again. I will continue to pray for your daughter and that a match is found soon

    Oh and I have NO idea how to link to my blog so I guess that means I don’t have a chance to win that candy-darn! next year I want to come and get some at the BBQ

  8. Lisa, I am so sorry that you had such a horrible day on Tuesday. Although my own issues are quite minor compared to your daughter’s, I completely understand about being frustrated with the medical establishment. Bless your heart!

    It really is ok to cry because sometimes you just have to get it out of your system. Please know that I am thinking of you and if you ever need or want a real chat, (not a long one because I know you’re busy) please let me know. I can always listen and offer a shoulder.

    You are such an amazing woman and it seems so unfair that you are going through so much. I think you must be extremely strong and I know you’re very special.🙂

  9. 😦 I’m sorry Lisa. I just learned about the struggles your sunshine is going through. this must be so hard for you. I will definitely pray for you all. especially for a new kidney to come as well as wisdom to everyone.
    Wish I was nearby to lend more support to you!

  10. Lisa, I’m so sorry you have had to go through this. Wish there was something I could do. I do pray for you and Marielle and keep you both in my thoughts. I have a gut feeling that this is all going to work out just fine. The road will be bumpy for awhile, but you will hit that nice smooth interstate soon. Hug Marielle for me. You are such a strong and brave woman. Lynn

  11. OH ugs HUGS hun! reading your post I can’t even think about how string you are to go thru this all- As a mom it brings tears to think that you are going thru so much! Thoughts and prayers to you and your family-

    Kori

  12. Prayers to you and your family Lisa!

    Cathy

  13. I just want to agree with post #6, I had my oldest child at just 24 weeks gestation (no warning, no history, no signs or symptoms) and they insisted that i have cesarean but either way she wouldn’t “make it” through the night, SHE WILL BE 17 IN NOVEMBER! so go with your instincts and research their information as you would do with anything else.

    I will continue to keep your family in my prayers.

  14. My husband had a kidney transplant in 1979 and while the days immediately following it had many ups and downs it all worked beautifully. Taking rejection medicine and no dialysis and coming up on 30 years!!! I will pray your daughter gets her transplant and all goes well. I am sure they have improved all aspects of the procedures over the years. Wishing you all the best.

  15. SEWING PATTERN DOWNLOAD AND OTHER FREE STUFF, AT DRITTOFILOWIKI.
    Talking to all the people into Patternmaking, Markermaking, and Textile Design i would like to report an interesting comment posted in BURDASTYLE blog about a wiki (DRITTOFILOWIKI) addressed to the Technical Operator in Fashion Design. The subscription is free of charge.

    Post on Burdastyle

    Val🙂

Trackbacks

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