Sew Hoping for a Miracle
Sunday, November 16, 2008
PLEASE SEE MOST RECENT UPDATE:
>>>>>>>>CLICK HERE<<<<<<<<<<
On Thursday night, we had to call an ambulance to get Marielle to the local emergency room as her condition was deteriorating quickly.
Marielle’s kidney blood numbers were climbing fast. Her creatinine was 10 (normal creatinine is 0.5 to 1.1), and her BUN was 119 (normal BUN is 8-20). Surgeons where called to place a tunneled catheter in her chest and start emergency dialysis.
After her 2nd dialysis treatment on Saturday, she got some color back in her face. She passed the time by reading a book on my Kindle book reader.
However, she was just too weak to finish more than a chapter of George Orwell’s 1984. She easily fell asleep for the rest of her dialysis treatment.
Although we were able to get her kidney numbers down a bit, her blood pressure (178/107) continues to be a major problem. This morning her blood pressure is even higher and they’ve started rescue blood pressure medicine to try to lower it.
Marielle will be hospitalized here in Staten Island until Monday night and then have her kidney transplant evaluation at NY Presbyterian-Columbia University on Tuesday morning if we can stabilize her. She will get to come home between Monday night and Tuesday morning. Not sure what will happen after that. If we can stabilize her, she’s be able to get outpatient dialysis until we can find her a kidney donor.
If you are interested in being tested to see if you are a possible match for a living kidney donor, you can find more information on my previous blog post. I can’t tell you how grateful I am for all the outpouring of support and prayers. I wish I could reply to each and every email, but my time on the computer is very limited. Please know I read each post and email and am touched by all the love from friends and strangers.
I will update everyone as soon as I can.
Entry Filed under: Encyclopedia of Life, Encyclopedia of ME, RAMBLINGS, domesticdiva, kidney, liver disease, liver transplant, transplant. .
1.
Mom On The Run | Sunday, November 16, 2008 at 9:16 AM
OMG! I’m sitting here with tears in my eyes. I’m Canadian – is there anything I can do? I’m praying for you and your family, but somehow that doesn’t seem like enough.
2.
Mary | Sunday, November 16, 2008 at 9:19 AM
Oh, Lisa! I feel so helpless and wish there were more I could do.
3.
Jacqueline R. | Sunday, November 16, 2008 at 9:44 AM
Lisa, my prayers continue to be with you, your family and your beautiful Sunshine Girl.
{{{HUGS}}}
Jacqueline
4.
Belinda | Sunday, November 16, 2008 at 10:30 AM
Lisa, I am so sorry! Like the other posters, I just feel helpless and wish that I could do more to help as well.
I am glad that you are keeping us posted and we’ll all continue to pray that Marielle gets a kidney.
Hugs to you, Marielle, and your entire family.
5.
Caroline | Sunday, November 16, 2008 at 12:40 PM
I know this is a rough journey for you right now, but know that God is with you and Marielle, and your entire family. My thoughts and prayers are with you this morning!
6.
Robin | Sunday, November 16, 2008 at 2:16 PM
Lisa, I continue to keep Marielle in my prayers hoping they will find a donor soon. I’m so sorry for her and your whole family to have to go thru this.
7.
Jamie Lentzner | Sunday, November 16, 2008 at 3:45 PM
You are in my prayers and thoughts today. I have not read your blog in ages (well anyone’s for that matter) and something made click on it today – I did not know why. Please take care.
8.
Barbara | Sunday, November 16, 2008 at 4:31 PM
Every time I check in I hope to read some better news about your brave girl. I hope the new hospital move goes well and that a kidney donor can be found for her very soon. Thinking of you and sending positive thoughts and wishes from across the sea in the UK. Bx
9.
Lynn | Sunday, November 16, 2008 at 5:33 PM
Lisa, I know how scared you must be. I just wish there was something I could do to help. You are a brave woman. I would have probably fallen apart by now.
My prayers are with you and your family.
Love you my dear friend, Lynn
10.
Julie Isa | Sunday, November 16, 2008 at 5:49 PM
Lisa, I ran across your blog last night looking for some great gift ideas (which I found, thanks) I posted your sight and your ideas on my blog and one reader emailed me and asked if I had looked further into your blog. I didn’t but soon did and posted your story on my blog. My prayers are with you and your family. Stay strong and have faith.
Love,
Julie
11.
Julie Isa | Sunday, November 16, 2008 at 5:54 PM
Lisa, I ran across your blog last night trying to get ideas for christmas. I posted my fabulous finds (of yours) on my blog and a reader emailed me and asked if I had looked further into your blog. I hadn’t but did. I posted your story on my blog and hopefully if the word gets out, your prayers will \be answered. In the meantime, my prayers are with your daughter and your family. Stay strong and have faith.
12.
trudi | Sunday, November 16, 2008 at 10:58 PM
Lisa, I am thinking of you and your Sunshine girls just about every second of every day! I hope you get good news quickly. All my thoughts and prayers are with you and your family. Sending lots of positive thoughts your way!! (((HUGS))) to you!!
Love,
Trudi
13.
Brenda Erickson | Sunday, November 16, 2008 at 11:03 PM
Still praying. My DH got an email back from Joann Kelly and said the coordinator would be contacting him within a few days. I am hoping that means he will be tested soon. I hope Marielle is stable soon and able to go home. HUGS
Love
Brenda
14.
carole | Sunday, November 16, 2008 at 11:24 PM
You may have already listed this somewhere on your blog but I was wondering if you need to have a specific blood type?
My heart breaks for you. You’re in my prayers.
15.
Geri | Monday, November 17, 2008 at 9:51 AM
I’ve printed out the form and faxed it to Joann.
Keeping you and Marielle in my prayers.
16.
Daria | Monday, November 17, 2008 at 2:40 PM
Oh no!!! Lisa, I’m weeping. I missed this post the other day, I’m so sorry. I’m calling you today. Love you tons and tons sweetie.
17.
Connie | Monday, November 17, 2008 at 6:17 PM
Lisa, I just read about this on the FI forum. I will be praying for you and your beautiful daughter.
18.
Tiff@Three Peas | Monday, November 17, 2008 at 7:22 PM
Lisa,
My heart is pleading with God to help your precious daughter. I pray everyday for her. I wish I could apply to be a donor but i have a heart condition that own’t allow me too. All I can do is pray!
19.
Stacey | Monday, November 17, 2008 at 8:26 PM
I just turned iin my donor application today! I’m praying hard for your sweet Marielle!
20.
Clara | Tuesday, November 18, 2008 at 11:07 AM
Constant prayer…I have Faith that a donor will be found soon…
LOVE and ((HUGS)) to you and that beautiful little girl of yours,
Clara
21.
Christi | Tuesday, November 18, 2008 at 11:27 AM
I’m praying, Lisa!!!
22.
Cammie Bobo | Tuesday, November 18, 2008 at 1:21 PM
Lisa~As a mother, I absolutely cannot imagine what you are going through, and I am sobbing uncontrollably as I type. I am thinking about you my diva girlfriend, and miss Marielle. I know that I am not a donor canidate due to the seizures, but trust me if I could I would in a NEW YORK MINUTE!!!!!!!!! I am thinking about you and have added the Pint Size Diva to our prayer list at church and you are always in my thoughts!! Big hugs to you both~
Cammie
23.
Dana | Tuesday, November 18, 2008 at 1:43 PM
Lisa – I just want you to know that our family will be praying for your daughter and for a donor to be found. As a mother, I can only imagine the agony and – where are the words? – emotion that you’re going through. Please keep us posted. If I weren’t pregnant in Texas, I’d be seriously considering getting tested. You are such a strong, talented woman and I know that that must also give Marielle the strength she’s had through all of this.
Love and Hugs,
Dana
24.
Tanya Melton | Tuesday, November 18, 2008 at 5:18 PM
My heart goes out to you and your family. I will keep your precious daugher in my prayers as well as your family. I wish that I could be a donor but my living in GA is a problem. I can help though by keeping my prayers lifted up for you. May God place his healing hand upon your child and bless your family beyond measure.
25.
Kelli | Tuesday, November 18, 2008 at 7:34 PM
Anthony and I returned our blood kits today. When will we know if we are candiates?
You, Marielle, Ron and Joey are in our thoughts and prayers daily.
Miss you, Kelli
26.
Carol | Wednesday, November 19, 2008 at 12:11 AM
That little Sunshine girl has been through so much. I hope a donor will be found soon. My prayers are with you and your family. I don’t know how you do all that you do Lisa. You are a very strong woman and to be admired.
27.
Laura/LaRue | Wednesday, November 19, 2008 at 1:31 AM
I wish I could donate, but the MS rules that out. Thinking of you in MN and hoping you get your miracle soon.
28.
Renee | Wednesday, November 19, 2008 at 4:19 AM
Still praying and hoping for a miracle! Sweet girl….
29.
Angie Seaman | Wednesday, November 19, 2008 at 12:18 PM
Praying for God’s love and his will to see all of you thru this trying and worrisome time. I have a saying that I live my life by. It is “There will be years that ask and there will be years that answer. In the end, God never wastes pain!”
Hang in there and be strong. Stay tough, stay faithful, stay fierce. Your daughter will ride your wave. Just know that there is a family praying incessantly for each of you here in Indiana. May God bless you and fill you with peace in your days ahead.
Big hugs. In his grip,
Angie Seaman
http://www.angelicagracedesigns.com/blog/
http://www.angelicagracedesigns.com
30.
Ramona Ortiz | Wednesday, November 19, 2008 at 2:47 PM
I just wanted you to know that i sent in my living donor application to this email address: kellyja@nyp.org That way you know and can follow up if you need to. I am so sorry your family is going through this and i hope they find a match soon!
31.
paula | Thursday, November 20, 2008 at 8:31 AM
I ask Our Lady, St. Joseph, St. Jude, St. Anthony, St. Michael, St. Raphael, her Guardian Angel and yours to ask without stoping to our good Lord for mercy and to help your daughter.
32.
Melissa | Thursday, November 20, 2008 at 12:39 PM
Thinking about you.
33.
Wanda | Thursday, November 20, 2008 at 5:20 PM
I hope Marielle is now home and stabilized in her care. My prayers are with you and your family for strength and peace. i’ll also be praying for the donor.
Big hugs to your entire family.
34.
Carrie Oak Rise Cottage | Friday, November 21, 2008 at 12:43 AM
I am adding my prayers for your daughter’s improved health.
35.
erin | Friday, November 21, 2008 at 10:34 AM
Hi Lisa! I am new here at your blog site, but nevertheless feel awful about what you and your family must be going through. I will gladly be tested as a donor if you think I can. I live in Georgia, but if you think thats not a problem (I would not think twice about traveling to save a childs life), than I will be happy to help any way that I can. I am a mother of two girls ( and a very young grandmother, I might add) and I can’t even imagine ANY mother having to go through something like this. Marielle is beautiful and seems very strong and will fight for what ever it takes to make her better. Don’t you worry, God is watching down on her and we all have her in our prayers! Please let me know ( I realize I am a complete stranger, but we are mothers together) how I can help! With love, Erin
36.
Dharmashanti | Friday, November 21, 2008 at 1:10 PM
Years ago, I donated my right kidney to a stranger. I was the first in Arizona to do so and one of the first in the U.S. Since then, it has happened more and more. If I still had a spare, I would do whatever I could to give it to Marielle.
I’m not a saint. I’m just a former drunk who was herself given a second chance at life. I saw there was a need and did something.
Keep asking. Trust the process. Miracles do happen.
Love,
Dharma Kelleher
http://www.dharmakelleher.com
37.
Bob Pease | Friday, November 21, 2008 at 1:12 PM
Lisa,
3 years ago I donated a kidney to my cousin, so this post hit home with me. You can’t put a price on life, and I know that the road you are on is a rough one. Your family is in my thoughts and I wish you all well during this hard time.
Living kidney donation dramatically increases survival rate. The waiting list for organ transplant can be very long – years. The quality of life when in need of an organ transplant just isn’t the same. Think of the things you take for granted everyday in your life – even maintaining a full time job is a luxury.
Anyone and everyone should reach out and get tested to donate.
-Bob
38.
Kate | Friday, November 21, 2008 at 1:34 PM
For anyone scared of donating, the removal of a kidney is now made through laparoscopic surgery. Pain and recovery time is greatly reduced.
I live a very healthy life with one kidney. My quality of life is actually better now because I have a great appreciation for living.
Best wishes in your search for a living donor. I have a great feeling your search will end soon.
39.
rachael | Friday, November 21, 2008 at 1:34 PM
my thoughts and prayers are with marielle
40.
Nori | Friday, November 21, 2008 at 1:46 PM
I am so sorry your daughter is having to go through this. I am 27 and in a similar situation. I have been on dialysis now for seven months and they are just now starting the testing to find me a transplant. I hope they find a donor soon so she won’t have to stay on dialysis long. (Let her sleep through it. It is so boring otherwise.)
41.
Luis Dias | Friday, November 21, 2008 at 1:47 PM
Get well soon, Marielle.
Best wishes from Goa, India
42.
Kelly | Friday, November 21, 2008 at 1:48 PM
You must be a phenomenal individual because I could never write something like this so calmly and beautifully.
I will definitely spread the word.
Thoughts and prayers are with you.
43.
Jeska | Friday, November 21, 2008 at 1:53 PM
*warm hugs*
I wish you good luck in your search, my younger brother needed a transplant when he was 17, thankfully my dad and I were perfect matches and he’s been healthy for 10+ years.
You and your family will be in my thoughts.
44.
Redneck Mommy | Friday, November 21, 2008 at 1:59 PM
My prayers and best wishes to you and your daughter.
I can’t imagine what your family is going through but please know I am thinking of you and keeping my fingers crossed that a perfect match is found quickly and your daughter stays strong and healthy enough to have the transplant as quickly as possible.
Hugs.
45.
traceytarrant | Friday, November 21, 2008 at 2:05 PM
My prayers go out to you and your family. I wanted to give my dad a kidney but i’m borderline diabetic and have had kidney stones in the past so they won’t take it!
I hope someone out there is a match!
46.
Steve | Friday, November 21, 2008 at 2:06 PM
My prayers and those of my family & friends are with Marielle, you and your family.
I truly sympathize.
May you have the strength required for this journey.
Hug Marielle with your arms & your thoughts. Think positive. Accept hugs from others. Cry when you need. Exult the outcome.
47.
Jenny, Bloggess | Friday, November 21, 2008 at 2:08 PM
I’m filling out the donation quesionnaire form today and I just tweeted it to others. I wish there was more I could do. Sending my thoughts to your little girl.
48.
Teresa Hall | Friday, November 21, 2008 at 2:12 PM
Deep love, prayer and concerns for your daughter and your entire family. Have tweeted and will continue to do so. May God provide
49.
Melissa @ The Inspired Room | Friday, November 21, 2008 at 2:12 PM
What a beautiful daughter you have…I have two girls myself and I cannot imagine the heartache you must feel. I will pray and pray for your sweet girl.
Blessings,
Melissa
50.
Connie Watts | Friday, November 21, 2008 at 2:17 PM
Hi Lisa,
I’m one of your twitter followers (@SellingOmaha) and found this post via Twitter. I donated my left kidney to my cousin 12/17/7 so I don’t have a kidney to donate but if any of your potential donors have questions about the process, I would be more than happy to talk with them about it and answer any questions they or their families may have.
My thoughts and prayers are with you and your family.
Connie
51.
Stefanie | Friday, November 21, 2008 at 2:20 PM
I came across your blog via my friend. She had emailed it to me. I can almost feel your pain. See, my son has one kidney that has failed and the other if failing. He is CKD III. He is 4 1/2 years old. He is my youngest of 3 boys. It is so hard to watch his numbers and lab results. I keep spreadsheets on him of everything. At the rate he is going, he may be on dialysis this time next year (last year this time, he was CKD II). He has been through several surgeries, so I can feel your pain to see your beautiful baby laying in a hospital bed, wondering, thinking…Even more sad is that I cannot give my son my kidney. I cannot even donate blood. I have a blood disorder where my red blood cells are about half normal size. My thoughts and prayers are with you, your beautiful daughter and your family. I can only imagine how difficult it is.
52.
Lynn Mosher | Friday, November 21, 2008 at 2:29 PM
Lisa, I just saw this through Twitter. No child should ever have to suffer physical afflictions like this and no parent should ever have to suffer the emotional and spiritual afflictions that this causes. But these things happen and we don’t know why. We just know the Lord will be with us and comfort us, if we allow Him to do so. I will be praying for your beautiful daughter, for a donor, and for full recovery. Blessings of peace to all of you…Lynn
53.
Lisa Survillas | Friday, November 21, 2008 at 2:39 PM
Hi. We are praying for you and your daughter. I have retweeted your information, however some are frustrated that your twitter account is locked and they can’t get to you. It would be easier to get people involved if you’d open that up and let everyone see and support. =) My heart goes out to you and your family. Prayers for a fast find of a new kidney.
54.
Blockhead Rod | Friday, November 21, 2008 at 2:40 PM
Just saw this on twitter. Our prayers are with your daughter. We will keep retweeting it, posting links on our blogs, and make announcement on our shows.
55.
Noelle | Friday, November 21, 2008 at 2:45 PM
Lisa, I just saw through the tweet stream about Marielle. My heart just aches for the both of you. Praying for Marielle and your family. Praising God for the testimony Marielle will be able to share as she receives her transplant and her health is restored. Praying for peace and strength in the journey. Noelle @TakeRoot
56.
onawhimsey | Friday, November 21, 2008 at 2:45 PM
Just saw this thanks to Blockhead Rod…..my heart goes out to you and all I can offer you is my hearfelt prayers to you and your family from across the Atlantic.
57.
Grace | Friday, November 21, 2008 at 2:50 PM
Due to my own medical Issues I cannot be a donor, but your and your family are in my prayers.
58.
Allison Blass | Friday, November 21, 2008 at 3:04 PM
I wish I could donate since I’m in the area, but unfortunately being a type 1 diabetic puts my own kidneys at serious risk and I need all the kidney I can get. I’m praying for you. Hope you find a match soon.
59.
Dawn | Friday, November 21, 2008 at 3:07 PM
What’s the twitter address? I’d like to follow updates…
60.
Andrea | Friday, November 21, 2008 at 3:17 PM
I am so sorry to hear this; your family will be in my prayers.
61.
cynthia | Friday, November 21, 2008 at 3:35 PM
keeping you and your family in my thoughts & prayers
62.
Robert Adler | Friday, November 21, 2008 at 3:36 PM
You and your daughter are in my prayers. Sadly due to certain conditions I can not donate medically, but I would love to donate some cash if that would help with the medical bills, etc.
Please email me and let me know if this is an option. There are a few of us willing right now. I know it’s a tough time and I don’t expect a response anytime soon. I’ve also attached my cell # in the email field if you’d rather call regarding this (remove the @vtext.com)
Keep your head up.
63.
Jess | Friday, November 21, 2008 at 3:38 PM
First off I would like to say you and your family are in my prays. I would also like to see if I could help your daughter, I tried to get the link to work and it wouldn’t let me. Please contact me with a way to see if I could help. I can do much eles but pray. I don’t know if she and I would match but I’m willing to give it a shot! Have a great weekend.
Jess
64.
Ed | Friday, November 21, 2008 at 4:19 PM
Miracles happen http://www.capecodonline.com/apps/pbcs.dll/article?AID=/20081021/NEWS/810210315
{PS- Fix this @ name on Twitter? http://search.twitter.com/search?q=%22Please+Retweet%22 }
Blessings,
Ed
65.
A Super Girl | Friday, November 21, 2008 at 4:20 PM
Just found your blog. So sorry to hear about Marielle. I’m 27 years old and had my kidney transplant nearly 5 years ago. I had a living donor and am doing great today.
I hope your transplant center continues to test anyone who is interested/willing (I think it’s ridiculous the one you were at wouldn’t!) I will continue to pray for your daughter’s health and for a donor to come forward.
66.
Camilla | Friday, November 21, 2008 at 4:41 PM
Just sent in my donor information. I am a O- blood type which is compatible with all blood types and would be compatible with your daughter’s blood regardless of her type. Hopefully I will hear back and be able to submit the blood tests ASAP.
67.
amyz5 | Friday, November 21, 2008 at 4:46 PM
read about this on twitter and have been retweeting often. i will do my best to help within my network.
68.
Mary Flaherty | Friday, November 21, 2008 at 4:51 PM
Lisa, I heard about your plea for a kidney donor for Marielle on Twitter from @sugarrae. As a parent, it brings tears to my eyes and an ache to my heart. The Twitter community is re-tweeting like crazy. I sent email pitches to the three NY network TV affiliates and the NPR affiliate. The more people who hear Marielle’s story, the greater the likelihood of finding a donor. So, this is just a note to let you know that hundreds of people are communicating your request throughout Twitterville today. @MaryFlaherty
69.
Queen of the Click | Friday, November 21, 2008 at 5:26 PM
Just wanted to let you know that I am praying for your daughter and that a match will be found soon!
70.
Bonnie Irving | Friday, November 21, 2008 at 7:45 PM
Lisa,
Why did your daughters Kidneys fail? Is it a Heredity? Or is it Because of her High Bp? I Am Just curious, Because I worked in Dialysis in an Outpatient Clinic for 9 1/2 years as a Patient care Technician.. 94-2003. If you have any questions i would be happy to answer! The main things to watch on dialysis are Diet, Diet, DIET! you have a fluid restriction( 1 ltr) Including water and things that are fluid at room temp. Like Ice cream, popcicles, soup, etc! if she follows her diet and doesnt gain too much fluid in between tx’s she should be able to lead a mostly normal life until she gets her Kidney
also, Have her stay away from High potassium foods, No orange juice most fresh foods, gatorade.. because if her potassium level gets too high . it will not be good. Take care and you can follow me on twitter:) Scrubbybubbles.
71.
Tracy Lynn | Friday, November 21, 2008 at 7:47 PM
I am currently on dialysis and have been for several years. It is intimidating, but not too scary.
A portable dvd player, big bag with blanket and pillow, and snacks all help.
I do dialysis at home now, by myself.
You guys are in my thoughts.
72.
Karen Swim | Friday, November 21, 2008 at 8:28 PM
Lisa, praying for you and your sunshine girl! Got the word on Twitter and will do my part to spread the message in an effort to find a donor. Know that there are strangers far and wide who care and are trying to help.
Karen
73.
Athena | Friday, November 21, 2008 at 8:40 PM
I am praying for you and your family, Lisa, and spreading the word in hopes it gets out to someone, somewhere, who is able to help.
74.
Bonnie Irving | Friday, November 21, 2008 at 8:45 PM
Tracy Lynn,
Are you on PD? or Hemo? sounds like PD. I allways said that if i needed to be on dialysis, I would strongly favor PD. You have ALOT more freedom on that then Hemo. ( for anyone that doesn’t know PD stands for Peritoneal Dialysis)
75.
Melissa | Friday, November 21, 2008 at 9:04 PM
I’m sending off my form right now. I live in Portland, OR and just heard about you on Twitter.
76.
Hiro Boga | Friday, November 21, 2008 at 10:10 PM
Lisa, my heart and prayers are with you and Marielle. May the Divine bring a miracle to your door, and your daughter receive the transplant she needs very soon.
Love and blessings,
Hiro Boga
77.
Elaine | Friday, November 21, 2008 at 11:09 PM
Lisa,
I had to stop working 4 yrs ago due to both the renal and severe orthopedic probs. Unfortunately, no insurance co. would cover me and I had no choice but to go on disability and medicaid. Because of this, and the horrible nightmare with the malpractice crisis here in PA, I have to travel for 2 hrs to Philly to see my ortho and a nephro. MC will only pay for one trip/YEAR!! My situation is getting worse..a nephro in Scranton WAS seeing me, but now that I’m having more probs, he’s basically told me he can’t treat me anymore unless I’m on “real” insurance..or self-pay. Barely surviving on $664/mo right now, THAT is out of the question. I’m TRYING to talk my family into helping me move–as my docs say thats my only chance at decent medical care. I’ve been in a renal crisis twice in the past 6 months, the last time I barely made the transfer to Philly,..mainly because of red tape.
My prayers are also with you and your sweet daughter. I can understand where you’re coming from re: philly, and much of the rest of your story. I’m also a renal pt. I was born with NPS, and only one functioning kidney–that in the past 5 yrs or so, is deciding it’s tired. I don’t blame it.
Anyways, I wish you and your daughter all the best, and Thank GOD it seems you’ve found some real professionals in New York!! God Bless!!
elaine
78.
Leanne | Friday, November 21, 2008 at 11:37 PM
Faxed over my donor questionnaire this afternoon. Hope you find a match very soon.
79.
mommypie | Saturday, November 22, 2008 at 4:04 AM
My thoughts and prayers for a match and full recovery are with you and your daughter. I’ll be linking to your site and putting out the word as much as possible. Keep the faith!
80.
Sherice | Saturday, November 22, 2008 at 1:40 PM
I’m sending lots of good vibes for a holiday miracle your way! I also sent it out to my 100+ followers on Twitter who in turn sent the message out to their followers – for what it’s worth!
I don’t know you but I don’t have to. Keep up the good fight girl and know that there are people out there who are pulling for you
81.
fisherofmen | Saturday, November 22, 2008 at 2:54 PM
I am praying for you right now. As I call him again and again and he will come with a Kidney gift this Christmas. I pray for a swift recovery from your transplant operation because my prayers are heard.
82.
collette | Saturday, November 22, 2008 at 6:42 PM
Wishing you and your family strength & courage during this difficult time. I’m praying for you…& hoping God sends an angel your way, that will be a perfect match for your beautiful daughter. God bless you…
Collette,
San Diego, California
83. Special Needs Sunday: Can You Help? « PsychMamma | Saturday, November 22, 2008 at 8:08 PM
[...] Special Needs Sunday is about saving a life. The Domestic Diva’s daughter, Marielle, is in desperate need of a kidney transplant. Because she had a liver transplant when [...]
84.
xue | Sunday, November 23, 2008 at 3:51 AM
I’m so sorry that you & yr family are going through this. I too, feel helpless & do not know what else to say. I will pray for you. -xue
85.
Heather | Sunday, November 23, 2008 at 2:56 PM
Sending BIG HUGS to
(((((LISA))))) and ((((MARIELLE))))
Hope your Sunshine Girls is feeling bettter… How is the dialysis going for her? You’re in our Thoughts and Prayers as always…
*HUGS*,
Heather =)
86.
momtastic stitcher | Sunday, November 23, 2008 at 4:02 PM
Put the word out here in New Mexico, USA to our homeschooling community. Wish I could donate but poor candidate due to my own kidney issues when I was a child even if I was a match. Even though we are strangers I will send positive vibes that a match can be found.
87.
--Deb | Monday, November 24, 2008 at 12:34 AM
Sending prayers and hugs….
88.
melissa | Monday, November 24, 2008 at 12:53 AM
hello. i am a mom who came across your blog through some of my contacts on twitter. i’ve reposted through all of my social networks and f&f. it’s what i can do and i hope it helps. sending prayers and thoughts to you, your daughter and family. peace…
89.
Val | Monday, November 24, 2008 at 1:30 AM
Lisa,
found your website while designing a sewing room, I have been praying for you and your precious daughter. I am medically not able to donate, I am praying you will find a donor soon.Thank you for your posts, you all have been on my heart.
90.
Dayngr | Monday, November 24, 2008 at 1:33 AM
My prayers are with you, your daughter and your family. My mother was on dialysis and watching someone you love with all your heart go through this is sheer torture. I’ll help spread the word in the hope it helps.
91.
Jane | Monday, November 24, 2008 at 1:40 AM
Lisa, it is hard to know what to say…
You and Marielle and your whole family are in my prayers. I hope you will have good news soon. Many blessings to you… stay strong.
92.
Sasha | Monday, November 24, 2008 at 1:48 AM
Lisa, your daugter is so lovely. She must be a brave lil spirit. I know your heart is breaking. My father was on dialysis for (3) years (3) times a week. It took alot out of him. I will see how I can be testd in my area if that is at all possible. (California) Have some friends in the NYC area and will forward the informatioto them also.
My heart, prayers and positive thoughts are with you and your precious daughter.
God Bless You!
93.
Samer Forzley | Monday, November 24, 2008 at 2:17 AM
thoughts with you and your family.
94.
lolalulu | Monday, November 24, 2008 at 9:59 AM
dear Marielle,…we’ve no words for this…just h♥ping for a miracle.
Here in Holland this ♡ly boy Ingmar http://www.niernieuws.nl/?id=47&loc=&cat=11 got a kidney from his grandm✿ther.
“Klokhuis” is a very famous & favorite Kids’ tv show in Holland & this program about ‘Ingmar’, got also a nomination by Cinekid Festival
Marielle…we {hug} you & for your entire family thoughts & ☮
95. 15 Year Old Girl Needs Miracle | Monday, November 24, 2008 at 1:01 PM
[...] Here is a link to her story and the how to get tested for donation information. If nothing else, please go over and offer this lovely girl your prayers and best wishes. [...]
96.
Bambi Blue | Monday, November 24, 2008 at 1:08 PM
I was tested and am not eligible for donation
You’re in my thoughts and prayers, both of you. I really wish I could help – I know that statement gets over used and becomes cliche, but I really do mean it. A match will be found soon, have faith.
97.
jyl_mommygossip | Monday, November 24, 2008 at 1:12 PM
I’m so sorry to hear of your daughter’s struggles at this time. I pray for peace and solutions and a healthy 2009 for her! ((HUGS))
98.
Lauren Murley | Monday, November 24, 2008 at 1:14 PM
Lisa,
My thoughts, heart and prayers go out to your daughter and your family. I originally found this posted on Twitter by @jessicaknows and I will be reposting links this entry on Twitter with hope that someone will read it and be able to help your daughter. I wish all the best for you!
In hope,
Lauren Murley
@laurenmurley
99.
Melissa | Monday, November 24, 2008 at 1:20 PM
still praying! hugs to you and your daughter.
100.
Cindy C. | Monday, November 24, 2008 at 1:21 PM
Prayers for your daughter and your whole family. I pray you find a donor SOON!
101.
Jessica Gottlieb | Monday, November 24, 2008 at 2:12 PM
Can you please contact me at onlineauthor at gmail.com I’d like to pass your story along to a local newspaper who can cover your story, she’s one of our mommy bloggers.
I’m good with viral.
xoxo
Jessica
102.
Dionna | Monday, November 24, 2008 at 3:12 PM
Your daughter is beautiful. As the mom of two girls myself, and someone who has passed a kidney stone so is sensitive to kidney issues and pain – my heart just goes out to you.
I have retweeted an alert for a kidney donor for your daughter and will continue to check in. Please do let us know how she is doing.
I am praying for her.
Dionna
103.
kimberly/tippytoes | Monday, November 24, 2008 at 3:24 PM
Sending positive thoughts to your daughter. I’m out of the kidney donation pool due to hypertension issues, but I hope a perfect match is found soon.
104.
ShriNagesh | Monday, November 24, 2008 at 4:35 PM
I’m so sorry to hear about this. Sending positive thoughts and praying for your daughter and your family. I pray that she will find a perfect match pretty soon.
God bless
105.
Lori Landau | Monday, November 24, 2008 at 5:12 PM
I’m a NJ mom blogger and want you to know that I forwarded your plea to everyone on my list. I want you to know that my prayers and thoughts are with you–I believe it is possible to find a donor. I really care and I’m sure others do too! ….
106.
Ashley | Monday, November 24, 2008 at 6:09 PM
All my thoughts and prayers are with you. You have some amazing women reading your blog I am sure something will come thru. I will post about your daughter on my blog also.
107.
Camilla Peters | Monday, November 24, 2008 at 7:32 PM
I got a email back from the lady that took the donor information and she said that she would have someone contact me about having a blood test done. Maybe it won’t take along time to do.
108.
Riki | Monday, November 24, 2008 at 7:44 PM
I don’t want to seem critical, but I’ve read some of what you’ve posted about your daughter, and I think you may be jumping the gun a little bit. I’ve been on dialysis myself for about 4 and a half years, and it’s not my first time on dialysis. I’ve had 2 kidney transplants. Unfortunately, neither of them kept more than a few years.
From what I can tell, your daughter has only been on dialysis a few months. That’s not really a huge amount of time. From what it sounds to me, she isn’t responding well to hemo dialysis. I think you should ask her nephrologist to think about peritoneal dialysis. It’s easier on the body and can be done in the home on your own schedule. I started dialysis the first time when I was 12 years old, and have always been on peritoneal dialysis. If it wasn’t for peritoneal dialysis, I wouldn’t have been able to go to school with my friends, or even live at home.
From what I’ve read, it seems that your daughter is the same as I was, young and relatively healthy if not for the kidney disease. Someone like that would most likely be transplanted within 2 years, because the chances of rejection are not as high.
I will say that I don’t like looking for donors online. I live in Canada, and that’s pretty much illegal here. If I were to find a donor that way, the hospital wouldn’t perform the operation, because there’s no way to prove that payment wasn’t made for the kidney, and well, purchasing organs is illegal in both our countries.
It’s my opinion that you should get as many of your friends and family to be tested that want to, and talk to the nephrologist about peritoneal dialysis. Even if she doesn’t get a match right away, at least it could make life a bit more bearable for her.
Oh, and remember, a transplant is still a treatment, it’s not a cure.
109.
Natasha Guillory | Monday, November 24, 2008 at 8:11 PM
Riki,
Please know that everyone’s situation is different. What may seem “not as urgent to you” can mean something completely different to someone else. I admire you wanting to share your story, but please note that everyone on this blog are sharing what we call Hope and Faith. To say that someone is “jumping the gun” is down right disrespectful. Fortunatley we live in America were we can make that choice to have strangers help one out in a time of need. Also, as a Christian women, I believe in God! and how I was raised and taught is that God will decide your fate, not a doctor or a machine. For you unfortunately, a transplant was not a cure, but for Marielle it may be!
110.
Kate | Monday, November 24, 2008 at 11:18 PM
FYI….Her daughter had a liver transplant as an infant. She doesn’t have the same likelihood of finding a living donor due to severely decreased compatibility due to her own antibodies and the donated liver. She has not been a well child for quite some time, not just the past few months.
As Natasha stated we are graced by living in the USA and can search and yell from any mountaintop we choose. As far as the payment goes– I’m quite certain the payment will be supreme feelings of triumph for helping someone’s child. I’m sure many of us do consider ourselves friends of Lisa even if we have never met her face to face.
I applaud Lisa for not sitting in a chair and curling up in the fetal position as many would do. (maybe myself-frozen from the angst) We cannot criticize someone taking action for someone they love, especially a child.
God Bless your family, Lisa!
111.
Kate | Monday, November 24, 2008 at 11:42 PM
This is a preface:
http://thedomesticdiva.wordpress.com/2007/06/30/my-sunshine-girlmarielle-lynnaire/
112.
m | Tuesday, November 25, 2008 at 9:16 AM
Hi,
My mom went into renal failure at 38 due to type I diabetes. Her Brother gave her a kidney and she has lived to see two grandchildren arrive in the world. I will keep you in my thoughts and prayers.
Best,
M
113. Social Media Helps Mom Find Kidney Donor for Daughter « I am. Are you? | Wednesday, December 3, 2008 at 12:02 PM
[...] condition continued to deteriorate but we later learned from Lisa that a donor match was found and an update earlier this week reports [...]
114.
Laura Esposito | Monday, December 8, 2008 at 3:00 AM
honey, i hope things work out for you!! get on EVERY transplant list yourself, don’t wait for your doctors or social worker. i know what you mean about being tired all the time!!i had my transplant 6-7-07 age 31. drink only the amounts of water(no soda, lots of salt) they say, CUT back on your salt intake, and don’t eat any foods that are white!! i found that worked best for my blood pressure!! i had my transplant as presbyterian too, Dr.Mark Hardy (head surgeon) Dr. J. Dube (nephroligist) are the best!!
the daily news did a story on me and my brother( donor) and PKD (form of kidney failure) if you have any questions or concerns or just want to vent about what your going thru, just email me, I’ll help out the best i can. best of luck to you hon